Lights Up!

Thanks to Plymouth City Council for arranging for Smeaton’s tower to be lit up for awareness week in Pink/Green, rotating every 5 seconds.  I don’t know what the ancient mariners make of it – is it port? Is it starboard?

It seems they might also have dressed the Pavilions up for us as well!

Awareness Appeal

A TV production company are trying to find a family member going through he final parts of genetic counselling and testing, for a item in a series about life changing events.

If  you are in this position and feel you could share your experience with the viewers of a primary UK TV channel please contact one of the branch officers, and we can put you in touch with the producer for further details.


Bristol Family Day

If you haven’t been to one of the National HDA events there may be one closer to you –

South West delegates are welcome to attend the Bristol Family day on

Sat June 2nd at  Somerdale Pavilion, Tiberius Road, Keynsham, Bristol BS31 2FF

Guest speakers, workshops, help and information

For further details HDA Website Bristol Family Day


Annual General Meeting 2018

Took place at

 The Highwayman’s Haunt, 10 Exeter Rd, Chudleigh, Newton Abbot TQ13 0DE

on Sunday 15th of April at 14:00

 You can view or download a copy of the Chairman’s report here – Chairmans report

Here is the Plymouth Support Group report – Plym Support Group Report AGM 2018

And the SHDA’s report – SHDA Devon AGM update April 2018


Latest Newsletter Christmas 2017