Plymouth Support Group

This is a page for the Plymouth Support Group which will be edited by Plymouth member John Crosswaite. The group meet regularly on a fortnightly basis in the Prayer Room, Local Care Centre, Mount Gould PL4 7QD from 10:30 till 12:00. If entering from the road through the main entrance turn right and the room is just along the corridor.
There is always the opportunity to share ideas or request advice from the Area Nurse Andrew, or Specialist HD Adviser Charles, who are usually present.

 

Thanks to our local fire service supporters (Retired) for their help with the Hoe event – see main news page.

 

Friday 28th June 2019

Friday 12th July 2019

Sat 20th July 2019 14:00 – 16:00
Afternoon Tea in the Garden, Plymouth, tea, cakes, bring & buy, in support of Trinity URC and HDA, contact us for details via the contacts page.

Friday 26th July 2019

Thursday 8th August 2019 – Family Barbecue
Plymouth – Children welcome, contact us for details via the contacts page.

Friday 9th August 2019

Here is a pdf of 2019 dates you can view or print and pin to the wall

Plymouth HD Support Group Meeting dates 2019

Friday 14th December 2018 Xmas Gathering
A very nice social occasion with at least 18 people present. Many thanks to Livewell and Andrew for maintaining the invitation to meet every other week together to share ideas and issues. The usual quiz was tackled, and a prize draw from which nobody goes home empty handed, and some nibbles which were pretty well destroyed, thanks to Charles for organising.

A mention for the HD Enroll research students who joined us and especially for Emma of the University Archery club, who kindly co-ordinated the raising of £325 towards the Devon Branch HDA through the winter shoot out event on Sat 8th December. Many thanks and we will certainly be able to use that to help people suffering from the onset of HD in the coming yesr. See the pictures and report on the main news page here Latest News

Assistants Activity Centre
A number of our members are using this service and giving good feedback – A friendly and caring environment where the person you care for can do a number of different activities.  Based in the Pearn, Eggbuckland, PL3 5JP
Telephone 01751 927011 Email activitycentre@assistantsathand.co.uk
http://www.assistantsathand.com

Many thanks for the kind donation towards Branch funds from Amanda & Kevin in memory of Amanda’s father Nigel. The award will be used in part to promote the boccia group below.

Boccia Group for HD Community
Boccia is a boules type game which is designed for people of all physical abilities to be able to participate in.
The aim is to get your ball as close to possible to the white “Jack” ball as you can.
The balls can be released in a variety of ways depending on ability, they can be thrown, kicked, pushed off the lap or even released with assistance from a ramp.


We have an opportunity to set up a community group at Ginko House Harley, where participants and their Carers can enjoy the benefits of playing this game regardless of ability. There will be a trained group leader in attendance and refreshments with all comfort facilities in easy reach.
1 hour will cost £25 so a minimum of 8 people would be needed to keep costs at a reasonable level.
In future “Ooomph sessions” (music and armchair exercise) could also be organised by our friends at “Improving-Lives Plymouth”

Please contact Andrew Parkinson (HD Nurse) on 01752 434535
or Lee Houghton on 07508 915 996 if you are interested in joining in.

 

Local patients & carers attend Royal reception
Huntington’s patients and carers who made a significant contribution to the funds for the research facility at the Penninsular Medical School were invited to the opening of the new facility.

Details here https://www.plymouth.ac.uk/news/hrh-the-princess-royal-opens-life-changing-health-and-medical-research-facility