This is a page for the Plymouth Support Group which will be edited by Plymouth member John Crosswaite. The group meet regularly on a fortnightly basis in the Prayer Room, Local Care Centre, Mount Gould PL4 7QD from 10:30 till 12:00. If entering from the road through the main entrance turn right and the room is just along the corridor.
There is always the opportunity to share ideas or request advice from the Area Nurse Andrew, Assistant Linda, or Specialist HD Adviser Charles, who are usually present.
Friday 3rd November 2017
Friday 17rd November 2017
Friday 1st December 2017
Friday 15th December 2017 Xmas Party
Care Home Accreditation Scheme
Ewan McHenry attended the Plymouth Support Group on 22nd September 2017, talking with the group about the development of a HDA care homes accreditation scheme. A new project that arose from carers who have made this difficult decision, making sure that residents get the best care possible.Should you also wish to add your comments please contact him on 0151 230 2171 or firstname.lastname@example.org or go to the HDA website and complete the survey
Members, Carers and friends join in the branch Barbecue
Members from the Plymouth Support Group and their families travelled to the home of Branch Treasurer Richard and Ann to enjoy a summer barbecue lunch with members from East Devon. We were able to make the acquaintance of several several families we hadn’t met before, and hope this might be the precursor to occasional East Devon Meetings.
Michelle sees her favourite team
Finally Michelle Houghton got the opportunity to watch her favourite football team Manchester United play at the Emirates stadium against Arsenal at the start of may kindly supported by the HDA and Willow Foundation.
Although it was a long trek up to north London and the score line favouring the Gunners with the victory over United was more than compensated for by the great memories and opportunity to see Manchester United play live.
Here is a pdf of 2017 dates you can view or print and pin to the wall
Plymouth HD Support Group Meeting dates 2017
Devon HDA Plymouth Support Group AGM Report 2017
The group has maintained regular meetings throughout the summer and autumn of 2016 thanks to the the kind services of Andrew and Linda with regular attendance from SHDA Charles. We feel privileged to have this regular contact with the nursing and support team, and although the request for a multi disciplinary clinic will not be going forward in the near future, our support team are always on top of any request for assistance from specialist services, or e.g. medication checks with a doctor, arranged by home visit. They also come out to see us at home on a regular basis.
Latest news is that there is some discussion about the possibility of opening up the Liskeard clinic to a wider group of patients across the peninsular, if they can travel there, and have the benefit of accessing neurology, psychology, and other related experts at the same sitting.
While numbers attending the support group fell somewhat over the summer, this is to be expected with people taking holidays. Charles gave us a report back from a conference he attended at the Hague in Holland with many of the leading European and world wide specialists, including a visit to a care centre with a radical physiotherapy regime, including learning how to fall, and sand dune trekking.
We had an opportunity to speak to Caroline Steed, one of the Clinical Care Commissioners who came to see how the service was working for us. While the general feedback was good for people who were symptomatic, it was felt that children and siblings at risk or not symptomatic also needed some support in order to cope with their own and their family situations. This is not catered for by the HD support service at present, although support may be available from the HD association and other organisations. In fact the HDA have set up a support system specifically for individuals, especially siblings who are not affected.
It was good to see so many of the group attending the HDA national AGM and Family Conference, 6 joining with Devon Treasurer Richard and Ann plus Charles making for very good representation for the South West.
13 members and friends gathered for the Christmas social meeting, enjoying a quick quiz, raffle and a few nibbles. It was also good to see two brothers come together on a couple of occasions this year, and for this event.